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Home Health Decision Guide

Is home health care right for your loved one? Use this guide to understand when agency is appropriate and what to expect.

What is Home Health Care?

  • The Focus

    Home health care is skilled medical care provided in your home by licensed professionals, helping patients recover from illness, injury, or surgery while maintaining independence.

  • The Philosophy

    Rather than trying to cure an illness, home health care emphasizes quality of life and dignity during a patient's final months. It's not about giving up—it's about shifting focus from fighting disease to living fully.

When is Home Health Appropriate?

  • Life expectancy of 6 months or less

    A doctor has indicated this prognosis based on the patient's condition and trajectory. This is the primary medical criterion for Medicare/agency eligibility. The 6-month estimate doesn't need to be exact—it's a physician's medical judgment about whether the patient is likely to decline.

  • Patient has declined curative treatment or reached natural endpoint

    The patient has chosen to focus on comfort rather than pursuing aggressive medical interventions. Or curative options have been exhausted and disease continues to progress despite treatment.

  • Focus shifted to comfort and quality of life

    The primary goal is now managing symptoms and maintaining dignity, not extending survival. The patient and family understand and accept this shift in care philosophy.

  • Patient and family understand agency goals

    Everyone is aligned on what home health care provides and what the expectations are. Honest conversations about prognosis, goals, and what agency will and won't do are essential.

  • Physical and/or functional decline is evident

    Signs include declining appetite, increased weakness, difficulty with activities of daily living, mental changes, or recurrent hospitalization. These indicate the disease is progressing.

Common Misconceptions

  • Myth: Home health is only for the elderly

    Home health care benefits patients of all ages recovering from surgery, managing chronic conditions, or needing rehabilitation services.

  • Myth: Home health means you're too sick to function

    When used appropriately, agency doesn't shorten life. The focus on comfort may actually help patients live more peacefully.

  • Myth: Home health is only for serious conditions

    Home health is appropriate for many situations including post-surgery recovery, wound care, medication management, and chronic disease management.

  • Myth: Home health is very expensive

    Medicare and most insurance plans cover home health care. Out-of-pocket costs are typically minimal.

Benefits of Home Health Care

  • Expert Symptom Management

    Specialized care team trained in pain and symptom control with 24/7 availability. Medications and treatments are adjusted as needed to keep the patient comfortable. Most patients report better pain control in agency than in hospital settings.

  • Family Support & Respite Care

    Counseling, respite care (short-term inpatient stays), and grief support for entire family throughout and after care. Family caregivers get professional support and relief from round-the-clock caregiving demands.

  • Care in Your Preferred Location

    Most home health care happens at home, but can also be in a facility, nursing home, or inpatient agency setting based on patient needs and preferences. Flexibility allows care setting to change if circumstances shift.

  • Spiritual & Emotional Support

    Chaplains and counselors to support personal values, beliefs, and end-of-life goals. Spiritual care is offered across religious traditions and to secular patients, addressing meaning-making and existential concerns.

  • Comprehensive Care from an Interdisciplinary Team

    One care team coordinates across doctors, nurses, home health aides, social workers, and chaplains. This prevents fragmented care and ensures holistic attention to patient and family needs.

  • Bereavement Support After Death

    Most agencies provide grief counseling and support groups for 12-13 months after the patient's death. This helps families process loss and begin healing in the months following death.

How to Start the Conversation

  • Choose the Right Time and Place

    Find a quiet, private moment when everyone is calm and there are no distractions.

  • Listen First

    Ask about your loved one's fears, wishes, and values about end-of-life care before sharing information.

  • Share Information Gently

    Explain agency as a choice focused on comfort and quality of life, not as giving up.

  • Involve the Doctor

    Ask the doctor about agency as an option and what they recommend for your loved one's situation.

  • Take Time to Decide

    There's no need to rush. It's okay to take time to think about the decision with family.

Next Steps

  • Talk with your doctor

    Discuss your loved one's condition, prognosis, and whether agency is appropriate for their situation.

  • Get an agency referral

    Your doctor can refer you to an agency provider, or you can explore options yourself.

  • Interview providers

    Use our provider comparison framework to evaluate options and compare them side-by-side.

  • Learn about costs

    Check out our cost and insurance guide to understand coverage and financial implications.

  • Make your decision

    Take time with family to make the right choice for your situation. There's no rush.

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